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Regaining Control: Your Digital Footprint

Maddy Meislin on November 9, 2023

tags: Disclosure, Online Reputation Management, Privacy

In today's digital age, our online presence plays a significant role in our personal and professional lives. For cancer patients and survivors, the question of whether to share their diagnosis and treatment journey online is a complex one – and sometimes it can even be accidental. Reaching out for support through online communities and social media can be a source of therapeutic empowerment. However, it's equally crucial to consider the potential impact of such disclosures on your online image. 

Whether you've actively engaged in social media or had your name mentioned in a post or article, you are leaving a digital footprint – or online brand. In a world where anyone from potential employers to colleagues can easily search for individuals on the internet, you will be Googled, so managing your online brand is paramount.  

Many cancer patients and survivors want to turn to online communities for support and this can be quite beneficial. However, if you decide to share your story online, know that anything you put on the Internet becomes public. By doing so, you may be disclosing your cancer diagnosis to current or future employers – or even current employers and/or coworkers. 

The good news is, if you disclosed your diagnosed online – intentionally or unintentionally -- or you just don’t like what your online image looks like, there are ways to regain control. Here’s how! 

1. Self-Google: Know Your Digital Footprint 

Start by conducting a Google search of your name. This will give you a sense of what information is associated with your online identity. Even if you are not active on social media, you might find posts or articles mentioning your name, previous work, or even mentions in support communities. Remember, most employers are only looking at the first couple of pages – they aren’t going to dig into the 21st page of your search history. 

2. Contact the Source 

If you come across information that you'd like to remove or adjust, consider reaching out to the source directly. In cases where medical records or sensitive health-related information are involved, you can request redaction or removal. You can also request contact information be removed from Google searches by clicking the three dots next to the search and ‘Remove Result’. 

3. Content Removal 

For content on external websites or social media platforms, politely ask the website administrators or content owners to remove any content that infringes on your privacy or violates your rights. 

4. Modify Privacy Settings 

Adjust the privacy settings on your social media accounts and other online profiles. Take control of who can view your information and posts. Websites like Mylifeline.org and Careingbridge.org can be used to share your story privately with those close to you. 

5. Create Content 

Create content that you want people to see. For instance, the more you post or blog on a specific site, the more likely that will show up on the first page of a Google search. Create a LinkedIn profile that you stay active on. Make sure to post a professional heat shot! 

6. Hire a Professional 

Consider hiring a firm that specializes in online reputation management (ORM). For more information on this read here.  

5. Regular Monitoring 

Make it a habit to regularly monitor your online presence. This way, you can stay on top of any new information or content that may affect your online image. One way you can do this is to set up a Google alert for your name, company, etc. 

Remember, keep notes about conversations and actions that may be related to your online medical information. By taking charge of your digital footprint you can navigate the online landscape with confidence and empowerment. View more information via articles on Your Online Footprint here. 


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