Home > Collective Diary > My Days with Myelofibrosis
Judy R. on September 14, 2025
I was Diagnosed with:
Myelofibrosis
Employment Status:
unemployed
Gender/Age:
Female/58
Type and Description of Treatments:
taking Jakafi chemo tablets twice a day
How do you feel today?
I feel pretty good
Since the diagnosis, what has changed in your life?
My staying out until 11 pm I'm now home and in bed by 10 pm from friends houses
What is going well for you right now?
what's going well for me right now is I don't feel sick and I can still take care of my house and family and I can still bake stuff for the grand kids
What is not going well for you right now?
my Blood levels, Hemoglobin and Hematocrit are all low
What has been the most challenging thing about having cancer?
being tired all the time and not having the energy to play with the kids or go for long walks with my husband
When difficulties overwhelm you, where do you go for support?
Family and Friends of Facebook support groups
How have your long-term goals or life goals changed since diagnosis?
I haven't really noticed any changes yet
What is your work arrangement right now? What are your hours?
I'm not working right now other than my own house
Since the diagnosis, what has changed in your work life?
I wanted to go back to work for senior services as a in home aid again but I cant because I am able to get sick to easy
What has helped you continue to work the most?
N/A right now
What advice do you have for others trying to work through treatment?
Just don't get upset with yourself and to take it slower if you have to and make sure you boss is on your side because there may be people that get upset because that just how people are and they don't understand what we are going through,
How have you dealt with any side effects of treatment?
I haven't had any side effects so far and for the treatments its going well
If "today's you" could give advice to "day-of-diagnosis you," what would you say?
Just stay calm and ask questions and have your family with you if you are able to I know that if my family wasn't there I wouldn't have remembered anything because as soon as my Dr said cancer my mind went into overdrive and I couldn't remember anything that I was told so I counted on my family and they are the best support team.